At the beginning of the documentary, Dion reveals, “Seventeen years ago I started to experience some voice spasming. This is the way it started. I woke up one morning and I had my breakfast. After having my breakfast my voice started to go up. It freaked me out a little bit.”
Dion explains that as a singer normally if your voice is tired it goes half a key or one note down. She experienced the opposite. It prohibited her from doing sound checks before a performance for too long. “But if you don’t warm up long enough, you can hurt yourself. So I was scared. I didn’t know what to do.
“It’s in the muscle. It’s in the tendons. It’s in the nerves. You can’t see anything because it’s not seeable,” she says about stiff-person syndrome. “Last year I got to a point where I couldn’t walk anymore. I was losing my balance a lot. It was hard to walk. A lot of pain and I can’t use my voice yet. Music — I miss it a lot but also the people — I miss them.”
Further into the documentary, Dion describes many incidents where her voice would go out and she would “cheat,” describing that she would either tap her microphone like there was an issue, run off stage for a quick change or stop a show altogether. “The lie is too heavy now,” Dion says.